I take neurontin 600mg 3 times a day and percocet 10/650 every 4-6 hours. It's a difficult one because everything is telling you it's making things worse not better but hang in there a little while longer, note each day on 1-10 scores how your (additional) pain & numbness is if they continue so you can show it him rather than trying to recall, works better sometimes I find, it supports your case better. however unlike previous... long it takes for the pains to settle? I can't take any of those mind altering drugs. I don't like being on it, but my neurologist at the Mayo assures me it is ok. I have noticed with the neurontin the nerve pain is getting better, still have some burning and tingling feelings and numb fingers but now I notice the back and neck pain is hurting more and I have to take my percocet sooner. Good luck. Since I got zero benefits from any dose I choose to discontinue it. I would like to try that! Less Opiates (new FDA rules) is good, but at least give us a quality replacement for PN. the pain is getting worse? I have gradually increased my dose from 100 mg a day to 1500 mg. I also had problems with Gabapentin. Lets see; 6 tablets a day with a even stronger HD 2 opioids and about $600.00 a month for a prescrition pain lotion that works fairly well and a life laying down and a lot of drugged sleep time OR "the Pain Lotion that I use for about $40/month and 4 Tramadahl a day and I can function and have a near normal life at 72. Gabapentin is fairly safe when you use it correctly. Sometimes it fully takes away the PN pain in my feet when I use it only 2X per day, however that is not typical. I can't say that it has decreased my pain at all. The study is created by eHealthMe from 4 Gabapentin users and is updated continuously. After giving my feedback, the dosage and time may be adjusted as necessary by my provider. Education on the use of Opiate/opioid drugs is a good very good idea as more information is good, but what are we to do for the severe pain like some of us have. I was just wondering if it is possible that gabapentin can sometimes make neuropathy pain worse. @salsa, @cwallen9, @lauraj155, @johnbishop, @lisalucier This is a great discussion on Neurontin/gabapentin. Gabapentin and tramadol are used to treat different types of pain. 9) Estrogen medication — Premarin If you can bear it, the pain may wear off but I appreciate it is pretty horrific at the moment for you. The only plus if you can call it that is I only have numbness with my PN and no pain. Very Simple choice!! The doctor said I could increase it as long as I was non-symptomatic for side effects. However, doctors do not prescribe gabapentin to treat arthritis pain or acute pain that results from minor injuries. Hello, can I ask - 'can gabapentin cause joint pain?'. Dorisena. This can help you identify whether or not the medication is working. BUT I began with Ametrypteline (sorry, poor spelling!) Anyway, you asked like several do what I do for my PN and if you can get them to send you a sample I would greatly recommend it for a much far lasting pain lotion. Like others, I can not find it on Amazon but it was there. Or at least that has been my experience with everything including my MM program. I have been diagnosed with Arthritus in my spine, Injections have not worked, so I have been signed of from the pain clinic. those 6 months and now at 2.6. Gabapentin is a drug that can be used as a treatment for seizures or chronic pain in dogs. Midginett 3 years ago Tips. Hi, sometimes this drug can give nasty side effects, they seem to be a lot like fibromyalgia, muscle pains weakness in all areas. continuous, uncontrolled, back-and-forth, or rolling eye movements If you don't mind me asking, what to you take or do for your PN now? Warnings. Good luck to you! I think they got it wrong first time round). Gabapentin can be taken in a wide range of doses. ... call them up, ask about SI joint dysfunction, sacrospinous or sacrotuberous entrapments of the pudendal nerve & artery compression. Gabapentin is an effective treatment for epilepsy and the excruciating pain that sometimes lingers after an attack of shingles. I wear socks to bed which seems to help. Months later I came down with a bad case of gastroenteritis. which didn't suit me, and the pharmacist said that Dr would agree that one or the other would suit, which proved to be the case. It sounds as...", "Lisa, For myself Gabapentin made my PN worse and made my arms...", "@salsa, @cwallen9, @lauraj155, @johnbishop, @lisalucier This is a great discussion on Neurontin/gabapentin....", "If you don't mind me asking, what to you take or do...", https://www.acsh.org/news/2017/12/26/neurontin-over-hyped-and-underwhelming-12242. I can't say that it has decreased my pain at all. That may be 2 or 3 weeks. Maybe: It's pretty infrequent, but Neurontin (gabapentin) has been known to cause joint pain or swelling, muscle pains and/or leg cramps. I have no problems with the face now, but have no idea why I am getting along well. Gabapentin can cause effects on the central nervous system, including drowsiness and low-level euphoria, but nowhere near the extent of opioid pain medications. I intend to be a tough old lady in the end rather than try to live half awake and unfed, unclean, and on drugs. Good luck to you, I hope you find some answers. I am now taking Elavil with the Neurontin, but I haven't noticed any difference in symptoms. Gaba gaba doo-doo is what I think of this drug. Off my soap box, the answer for myself is Gabapentin and Pregablin (Lyrica) simply made things far worse, as it seem to affect the whole CNS and not the PN issue. My numbness never lasts very long, and is mostly at night or early in the morning. This condition severely restricts my activities,and there seems to be no answer.I still visit the Gym twice a week to keep stumble.There is nothing left but to keep going with. Introduce a medication "gently" as in starting with the minimum dosage.. Give my body time to adjust to the new medication. I did have a skin biopsy that was negative for SFN, but positive for autonomic neuropathy (sweat glands). But as with most medicines, this too has several drawbacks. But I am very thankful for fineding it as I have been using it for about 3 years now. When I read about others, I think maybe my pain is not as great as some have, which really hurts my heart a lot. I take a combo of Amitriptyline(an older antidepressant used for nerve pain) and Neurontin. Honestly, I don't know if it has made the pain worse, or if it's just gotten worse/evolved on its own over time. But, I hope if you decide to decrease the neurontin to tell your doctor and of course do it very gradually as you probably already know. After about a year I tried Gabapentin again for nerve pain and after 5 mo's the joint pain came back again, but worse this time. It took hours to unclench them. Can Gabapentin make neuropathy pain worse. In fact, my pain has gotten steadily worse. Inflammation is one of the body's natural responses to disease or injury. I too am taking Gabapentin. I agree with you, I wish none of us had this awful stuff. Involuntary Eye Movement 2. I also have idiopathic small fiber peripheral neuropathy which I've had over 20+ years. I have a bad headache coming on so I can not speell very well right now. If you can find it , I use a PN anti-pain lotion called NeuroFreezee. This is a reivew of how effective Gabapentin (gabapentin) is for Hip pain and for what kind of people. I did take Cymbalta with Neurontin, which may have helped, but I developed a bad case of tinnitus and I wanted to see if the Cymbalta was causing it. Gabapentin can have these effects Helz & whilst it usually wears off the longer you're on it & increasing the dose you mustn't just stop it of your own accord, I can't stress this enough, even on a comparatively low starting dose. Hi @salsa, welcome to Connect. Thank you for posting and sharing your experience with gabapentin. It wasnt that long ago when people assumed pets didnt feel pain as acutely as humans did. Since I haven't really noticed a decrease of my symptoms (pain keeps spreading and getting worse, I thought maybe I should stop the Neurontin since it doesn't seem to help and maybe, just maybe, it has been making it worse. Everyone have a great or at least a better day! -Laura. People with radiating chronic spine pain may be prescribed gabapentin or pregabalin to treat their nerve-related neck, back and/or leg pain. I can't stay on drugs that drug me for weeks waiting for me to get used to them. If you suffer from neuropathy – there’s a good chance you’ve heard of or even been prescribed the drug Gabapentin to treat your nerve pain. Best of luck, Dr. Jeffrey Wint answered 34 years experience Hand Surgery Maybe an increase would help, as for me I would say taking it has not increased my pain, but has been a help in reducing episode length. Some know this medication by the brand name Neurontin. Jake. Now, veterinarians are guided by the principle of assuming pain. They work somewhat on me for pain however I am on a low dose of neurontin due to its sedating effects. Chris, After reading the experiences, I now understand why the doctor probably thinks I am hopeless because I reject the drugs for my problems. Re: Can gabapentin make my pain worse? Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. So far so good…..I am sleeping right through my hurdle of 5:30 a.m. I so hope you can get some additional answers and it’s great that you could get additional testing at John’s Hopkins. Looking at the side effects for gabapanten, joint pain and tendonitis and other musculoskeletal side effects can happen. Become an Arthritis Foundation … Even tried Amitryptiline recently and it kept me up all night and then I couldn't stay awake during the day and did nothing for the nerve pain. Researchers noted that 22 percent of the 27 patients in the study discontinued their participation in the trial due to “intolerable side effects.” Rheumy says to triple the gabapentin dose as it won't be this causing it but it didn't start until I started taking it. Go to your GP or your Consultant if the gabapentin does not work or makes you worse. When I first noticed pain in my hands, I thought it was my age; I'm 68. I had mild reaction to meds some hip pain back... experiencing joint pain? — https://www.acsh.org/news/2017/12/26/neurontin-over-hyped-and-underwhelming-12242. Hi! The effects of gabapentin on an unborn child are unknown. 1 doctor agrees. I do have neuropathy in my left foot and take nothing for it nor do I mention it to my primary doctor. If I can't stay awake enough to get out of bed, I quit the pills and don't try to stay on them. Widely considered non-addicting and a low risk for abuse and overdose, gabapentin has been touted as an alternative to opioid for the relief of chronic pain. The pain was really bad that I had to take pain pills on a daily basis. Now, I still get my episodes but they last maybe 10 minutes to 15 minutes max. Drowsiness 3. Many diabetics suffer from neuropathy. But I live a fairly productive life style, but I do get a few looks wearing my old Birkenstock sandals. Become a Member . I don't intend to check into a nursing home so I can lay in an expensive place half asleep waiting for problems to improve. -Laura, Liked by John, Volunteer Mentor, Lisa Lucier, Leonard. In fact I'm in more pain now. Have your physician start at the lowest possible dosage and make increases according to its effectiveness in managing your pain. I ended up wearing stiff construction gloves to bed. Now with the gabapentin and Dermatran that is a topical cream that I rub into my feet daily or 2-3 times a day. Uncoordinated If experienced, these tend to have a Less Severe expression 1. If you feel it has made you worse let your Dr know that you don't want to increase the dosage. See below for a comprehensive list of adverse effects. I started getting peripheral neuropathy pain about nine months ago in my feet and hands right after I received a cervical steroid injection. The flow and meet each happening as they occur.Fortunately my mind is still clear. @cwallen9 — I don't know the answer to your question but I think it's always good to ask questions so I'm hoping someone will be able to respond and share more information. What dose are you on? In 2002, The Clinical Journal of Pain reported on the results of a study that was conducted to determine whether gabapentin could be used as a long-term treatment for pain after a spinal cord injury. @cwallen9, did you have the skin biopsy for sfn? They are also very very hard to come off when you have had enough of the side effects. I still take the gabapentin without any side affects. I don't know if my brain is literally damaged or something or if the meds make me forget the most basic things, and do the stupidest mistakes. I use the cooling lotion for my knees, muscle pain and even my arthritis pain as well. Maybe that is just wishful thinking, but I thought it might be worth a try. Other side effects include:blurred vision, diplopia, peripheral edema, tremor, amblyopia, irritability, and xerostomia. It can be used to treat seizures, neuropathic pain, restless leg syndrome, and a number of other issues. Just don't stop cold-turkey—you'll likely have to taper off of the medicine, since suddenly stopping gabapentin can make you feel worse, says Patel. I got off it and within 3 mo's the pain went away. It might also be the case that a new medication has been introduced which might be more beneficial and so a replacement plan is delineated. I've been on gabapentin for at least a year now at 600mg at night. Low Energy I started taking gabapentin about 7 months ago. And so I requested the addition of one more 300 mg of gabapentin at bedtime. Commonly known by its brand name Neurontin – the drug has been used for a number of off-label uses. Won't go on it again. Please, make your urgently-needed donation to the Arthritis Foundation now! Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them. While I was sick in bed, I was going at both ends, so I stopped taking Gabapentin completely. Reply (0) Report. I swell up like I am going to explode and caused something akin to dementia. Everyone reacts so differently to medications and can be trial and error determining what works for you. Hallo. Although I do have uneducated guesses as to the cause such as a bad back, three surgeries in two years. My neurologist changed the time for taking the gabapentin to an evening dosage to ensure a restful sleep because I was consistently awakened by the zaps or electric shocks throughout my body almost daily at 5:30 a.m. My body, within a few weeks, settled down and responded to that dosage and time with the eradication of the zaps and unfortunately, an introduction of the burning across the abdomen and chest. For many individuals, gabapentin (also known as Neurontin) is a necessary medication. Not only are we our own advocates, but we also have a responsibility to take notes and then inform our medical team accurately so they can modify dosages and medications based upon how our bodies responded. It makes me realize that all of us have unique medication challenges and different reactions which must make it difficult for our medical providers to help us choose our treatments and medications wisely. Was on Gabapentin for 5 mo's and started to have shoulder, neck and knee join pain. And please be free of suffering today. Although I do have uneducated guesses as...", "A few members who may have some thoughts on whether gabapentin can...", "@cwallen9, did you have the skin biopsy for sfn? It is a best friend to me, I couldn't do without it. Unfortunately, though, like most medications, gabapentin has a number of side effects, some of which are mild but many of which can be serious, even dangerous. I was prescribed gabapentin & had some increase in pain though it wore off but in spite of reaching maximum dose for the complaint I was prescribed it for it did nothing for me at all so had to taper off it. Nerve pain is unfortunately difficult to treat. i have been taking bc powder, and neurontin (gabapentin). I would never have gotten to this point based on my first experience with gabapentin. Inflammation can cause pain, stiffness, … It never takes the pain away entirely. A few members who may have some thoughts on whether gabapentin can make neuropathy worse whom I'd like to invite into this conversation are @jakedduck1 @lauraj155 @jackkdh @jmjlove @ahendershot. 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